update on Deanna

Deanna had a sleep study done on Nov.4th (Happy 9th Anniversary Brian) b/c we know that she tends to hold her breath and destats at night while sleeping. WE didn't know how often it happens or why, we still don't know why, that is a process that is being looked at, but the lil miss was put on oxygen this past Monday and needs it around the clock, ugh. It is hard to imagine that the little girl needs it, she looks normal and cute, but the drs. tell us that she has some obstruction that is keeping her from getting enough oxygen and that she is trapping CO2 (and probably doesn't help her eating ability). The result so far is that Deanna is delayed developmently, we know that she can catch up and we love the fact that she is still a baby for longer, but is saddend b/c we don't know the long-term results. Please pray for wisdom for the doctors and Brian and I. It is hard b/c we don't know the reasoning for much of anything w/her, super frustrating. This past week, we went to Children's again...and saw a pulmonary dr. He said that Deanna aspirates, has silent reflux, and has a hard time swallowing based on the sleep study. We are treating her w/ another steroid for her lungs as well as one for her nasal passages (to help reduce the swelling of her adnoids). We are treating pneumonitis with the other steroid. Bascially we are still treating symptoms and haven't yet come up with the problem to be healed. ugh.



WE have another ENT appt. at Children's on the 23rd of this month, so hopefully I will have more news that week of Thanksgiving and can post that week.I am taking a week off from appointments that week, yay!

sidenote: The boys brought firewood down from the shed today. Casey is now driving the ranger on our place and field behind our house, such a big shot! They loaded it up w/ wood and then it was too cute, Adam hopped out and gave hand signals for Casey to back up to the basement door to unload. Watch out- farm kids have taken over and taken charge.





Until later...Happy Thanksgiving! We are so blesed by what we have, what we can do, and what we live for. We are grateful for all of you!