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Friday, December 30, 2011
Sunday, May 23, 2010
Summer is almost here!
Field Day at school- Friday, May 21st
Deanna is 10 1/2 months old
I wanted to give an update about "Lil Miss". She was seen by a Special Care doctor at Children's Hospital almost 2 weeks ago. The Dr. gave a diagnosis of Arthrogryposis. Here is a link to find more information: http://amcsupport.org/ This diagnosis doesn't have anything to do with Deanna's feeding issues-that is caused by some fluid on her brain stem. We saw pictures of her brain from one month old and are in the process to have another MRI done to see what it looks like currently. I will post again soon when I know more information and can share more pictures. The important thing is she is happy, healthy (sort of :)) and so much fun. She gives our family such joy with her very expressive face-her eyes "smile" a lot! Her brothers can't get enough time with her and love on her too much, if that is possible.
We've got Casey's 8th birthday coming up and the last days of school to occur-then lots more pictures.
Friday, January 08, 2010
Deanna is 6 months
Here is an update of our daughter...
She is so much fun!! Her eyes and whole face move when she smiles and somehow her eyebrows have become first impression sensor...when she is curious, they raise w/ expressive eyes, when she is sad, they frump down and her eyes go shut and mouth gets tight, etc.
She is 15 lbs, 1 1/2 ounces and is growing well and is mostly healthy. We don't know why she doesn't eat by her mouth still and we may just skip the bottle feedings this round. In a week or so, we will attempt some cereal or applesauce or somthing of substance, but we are waiting for her to be sitting up w/ better head control...she still resembles a bobble head doll, but way cuter!! She is beginning to reach for things and really enjoys musical toys, dolls, and things that light up. She still sleeps between every feeding and is on oxygen at night. She is soooo easy going and a great baby-we are so blessed by her.
Oh yeah, she started sucking her thumbs-we are encouraged at her new habit even though we don't approve of it for very long. At this point, any oral sensory things are good and hope to ease the strategy into eating.
Happy New Year!!
Here is a copy of our New Year's letter in case you didn't receive one in the mail because...
a. You live close enough and see us often enough YOU could of wrote it
or
b. I don't know what happened, but let me know if you want to receive a copy next year. :)
Happy 2010!!
As I write this annual letter catching you up on my family this past year, let me first say that we are extremely blessed and grateful for the simple things in life that we have endured, experienced, and have been given. My heart has been moved and refined and my eyes well up with tears of gratitude when reflecting on 2009. It was a year of highs and lows and everything in between so here it goes…
January-As a family, we enjoyed the National Western Stock Show in Denver, CO and witnessed Casey finish his mutton bustin’ career with his personal best ride and taking a close 2nd to the overall winner.
February-Walt Disney World- Here we come! We enjoyed 8 days in Florida for our first family vacation. It was wonderful and exciting. The boys love rollercoasters! It was the most magical time of our lives and we can’t wait to go back. The boys don’t understand why we haven’t returned yet?
March- We welcome Duke, our Australian Shepherd puppy, to live with us. We quickly learned that having a puppy takes a lot of work even when we don’t feel like it.
April- We found out that a daughter will be our addition in July. Casey enjoys playing flag football and Adam continues playing soccer under mom’s coaching every Saturday.
May- I joined my mom and sister for our annual vacation. This year we spent a long weekend in Las Vegas enjoying the sun by poolside and seeing Jimmy Buffet in concert.
June- Casey turns 7 years old and Colorado Rockies fans were born. We took Brian to the Rockies game for Father’s Day and the boys loved it, even when there was a tornado delay of game. Both boys played baseball in the recreation program in Wellington and had a “Sandlot” game in our yard the other days of the summer.
July- On the 5th, we welcomed lil miss Deanna Nicole to our family. We have learned many lessons from Deanna in her life so far and can’t wait to see what else she has in store for us. My favorite part of having her is to see her brothers become gentle, affectionate, and smitten by their sister; they both are great helpers. Also joining our family is Russ Anderson as our new brother-in-law as aunt Heidi was married on July 25th.
August- The biggest highlight of the year was bringing Deanna home from the hospital on the 11th. Both boys began school on the 19th with Casey in 1st grade and Adam in kindergarten.
September-This month was the beginning of many, many appointments for Deanna. She is visted by an OT, PT, and nurse on a weekly basis. Brian began corn harvest with great yields and the boys played soccer on the same team each Saturday.
October- Adams turns 6 and we get our first snow days from school-yay! The boys don their Colorado Rockies uniforms for Halloween and Casey begins wrestling for the fall.
November- Deanna weighs in at 12 lbs and 13 oz and is 22” for her four month checkup. Casey takes 2nd in the G.R.I.T. wrestling tournament for the 2nd year in a row. We had a wonderful Thanksgiving in Colorado Springs with the Kraft family. Brian has been enjoying the Broncos games this season as a 1st time season ticket holder.
December- It seems like each day of this month we did something to prepare for or celebrate Christmas. The truth is, we should be celebrating Christmas everyday—more of Christ within us. Living with peace in our hearts, treating each other with kindness, love, and respect, giving more and receiving less, and being grateful to the One that gave us life.
My prayer for 2010 is that the Saviour that created you, lives in your heart and you feel the comfort of His peace, His love, and His acceptance throughout the year.
Love, Brian, Jamilyn, Casey, Adam, and Deanna Kraft
Jami=sonshine4@hotmail.com OR Brian=bkrafty@lpbroadband.net
a. You live close enough and see us often enough YOU could of wrote it
or
b. I don't know what happened, but let me know if you want to receive a copy next year. :)
Happy 2010!!
As I write this annual letter catching you up on my family this past year, let me first say that we are extremely blessed and grateful for the simple things in life that we have endured, experienced, and have been given. My heart has been moved and refined and my eyes well up with tears of gratitude when reflecting on 2009. It was a year of highs and lows and everything in between so here it goes…
January-As a family, we enjoyed the National Western Stock Show in Denver, CO and witnessed Casey finish his mutton bustin’ career with his personal best ride and taking a close 2nd to the overall winner.
February-Walt Disney World- Here we come! We enjoyed 8 days in Florida for our first family vacation. It was wonderful and exciting. The boys love rollercoasters! It was the most magical time of our lives and we can’t wait to go back. The boys don’t understand why we haven’t returned yet?
March- We welcome Duke, our Australian Shepherd puppy, to live with us. We quickly learned that having a puppy takes a lot of work even when we don’t feel like it.
April- We found out that a daughter will be our addition in July. Casey enjoys playing flag football and Adam continues playing soccer under mom’s coaching every Saturday.
May- I joined my mom and sister for our annual vacation. This year we spent a long weekend in Las Vegas enjoying the sun by poolside and seeing Jimmy Buffet in concert.
June- Casey turns 7 years old and Colorado Rockies fans were born. We took Brian to the Rockies game for Father’s Day and the boys loved it, even when there was a tornado delay of game. Both boys played baseball in the recreation program in Wellington and had a “Sandlot” game in our yard the other days of the summer.
July- On the 5th, we welcomed lil miss Deanna Nicole to our family. We have learned many lessons from Deanna in her life so far and can’t wait to see what else she has in store for us. My favorite part of having her is to see her brothers become gentle, affectionate, and smitten by their sister; they both are great helpers. Also joining our family is Russ Anderson as our new brother-in-law as aunt Heidi was married on July 25th.
August- The biggest highlight of the year was bringing Deanna home from the hospital on the 11th. Both boys began school on the 19th with Casey in 1st grade and Adam in kindergarten.
September-This month was the beginning of many, many appointments for Deanna. She is visted by an OT, PT, and nurse on a weekly basis. Brian began corn harvest with great yields and the boys played soccer on the same team each Saturday.
October- Adams turns 6 and we get our first snow days from school-yay! The boys don their Colorado Rockies uniforms for Halloween and Casey begins wrestling for the fall.
November- Deanna weighs in at 12 lbs and 13 oz and is 22” for her four month checkup. Casey takes 2nd in the G.R.I.T. wrestling tournament for the 2nd year in a row. We had a wonderful Thanksgiving in Colorado Springs with the Kraft family. Brian has been enjoying the Broncos games this season as a 1st time season ticket holder.
December- It seems like each day of this month we did something to prepare for or celebrate Christmas. The truth is, we should be celebrating Christmas everyday—more of Christ within us. Living with peace in our hearts, treating each other with kindness, love, and respect, giving more and receiving less, and being grateful to the One that gave us life.
My prayer for 2010 is that the Saviour that created you, lives in your heart and you feel the comfort of His peace, His love, and His acceptance throughout the year.
Love, Brian, Jamilyn, Casey, Adam, and Deanna Kraft
Jami=sonshine4@hotmail.com OR Brian=bkrafty@lpbroadband.net
Saturday, November 14, 2009
update on Deanna
Deanna had a sleep study done on Nov.4th (Happy 9th Anniversary Brian) b/c we know that she tends to hold her breath and destats at night while sleeping. WE didn't know how often it happens or why, we still don't know why, that is a process that is being looked at, but the lil miss was put on oxygen this past Monday and needs it around the clock, ugh. It is hard to imagine that the little girl needs it, she looks normal and cute, but the drs. tell us that she has some obstruction that is keeping her from getting enough oxygen and that she is trapping CO2 (and probably doesn't help her eating ability). The result so far is that Deanna is delayed developmently, we know that she can catch up and we love the fact that she is still a baby for longer, but is saddend b/c we don't know the long-term results. Please pray for wisdom for the doctors and Brian and I. It is hard b/c we don't know the reasoning for much of anything w/her, super frustrating. This past week, we went to Children's again...and saw a pulmonary dr. He said that Deanna aspirates, has silent reflux, and has a hard time swallowing based on the sleep study. We are treating her w/ another steroid for her lungs as well as one for her nasal passages (to help reduce the swelling of her adnoids). We are treating pneumonitis with the other steroid. Bascially we are still treating symptoms and haven't yet come up with the problem to be healed. ugh.
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WE have another ENT appt. at Children's on the 23rd of this month, so hopefully I will have more news that week of Thanksgiving and can post that week.I am taking a week off from appointments that week, yay!
sidenote: The boys brought firewood down from the shed today. Casey is now driving the ranger on our place and field behind our house, such a big shot! They loaded it up w/ wood and then it was too cute, Adam hopped out and gave hand signals for Casey to back up to the basement door to unload. Watch out- farm kids have taken over and taken charge.
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Until later...Happy Thanksgiving! We are so blesed by what we have, what we can do, and what we live for. We are grateful for all of you!
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WE have another ENT appt. at Children's on the 23rd of this month, so hopefully I will have more news that week of Thanksgiving and can post that week.I am taking a week off from appointments that week, yay!
sidenote: The boys brought firewood down from the shed today. Casey is now driving the ranger on our place and field behind our house, such a big shot! They loaded it up w/ wood and then it was too cute, Adam hopped out and gave hand signals for Casey to back up to the basement door to unload. Watch out- farm kids have taken over and taken charge.
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Until later...Happy Thanksgiving! We are so blesed by what we have, what we can do, and what we live for. We are grateful for all of you!
slightly overwhelmed???
My very cute and adorable kiddos. I am so blessed!
I realize that many of you check this often and I apologize that I am not a very good blogger...I am overwhelmed with life as it is now. I'm trying to keep up with everyday things, such as school, homework, laundry, meals, new baby, and many appointments. Oh yeah, the last month we had a family birthday, school parties, Halloween, harvest party, a visit to Children's Hospital, ended soccer season and started wrestling and Adam's 6th birthday on top of my "normal" week. It isn't all bad and crazy, well I guess crazy and chaotic is now normal for us. I'm being refined as a person, mom, wife, and friend. There is more of me with less time, but a more complete me and less of a flaky person who isn't sure what I want out of life. Deanna's obstacles have taught me much about myself. I am a strong person, always learning, starting to question and ask questions rather than take what is given w/o the worry or guilt of hurting some one's feelings, and that I have limits and breaking points and that I get overwhelmed!!! And its okay, I will get through this craziness, just one step in front of the other and repeat, again, and again. I've realized that I can't just think things through in my head, that I have to write it down on paper or it won't happen. Oh Lord, I pray for more self control and self discipline to accomplish my "to do" list more efficiently. :)
Anyways, the above was probably more than you wanted, sorry-I vented and now on to the pictures!!
My 32nd Birthday. A special weekend fish trip at Elk Mountain, Wyoming with the Marrou family, thanks friends for a wonderful and relaxing weekend.
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Little Miss Deanna Nicole... the last 2 1/2 months
Deanna beginning to smile.
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2 1/2 months old
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2 months old
Cute little "farmer girl" all decked out in John Deere!
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Brotherly Love
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Denver zoo day-we got Casey out of school early and went for a fun afternoon!
Both boys are excellent students! They received the SOAR award at school, it stands for Self-Control, Optimism, Attitude, and Respect. Both boys got the award for displaying self-control--how do they get it when I need/want it for my life?? go figure, anyways we are so proud of them. Look how boastful Casey's chest got when the principal was talking about him, too cute!
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1st snow of the fall-October 10th,lots of snow to play in! Duke (the dog) loved frolicking in the snow.
Adam's 6th Birthday-he has become a huge Rockies fan
Happy Halloween!
I realize that many of you check this often and I apologize that I am not a very good blogger...I am overwhelmed with life as it is now. I'm trying to keep up with everyday things, such as school, homework, laundry, meals, new baby, and many appointments. Oh yeah, the last month we had a family birthday, school parties, Halloween, harvest party, a visit to Children's Hospital, ended soccer season and started wrestling and Adam's 6th birthday on top of my "normal" week. It isn't all bad and crazy, well I guess crazy and chaotic is now normal for us. I'm being refined as a person, mom, wife, and friend. There is more of me with less time, but a more complete me and less of a flaky person who isn't sure what I want out of life. Deanna's obstacles have taught me much about myself. I am a strong person, always learning, starting to question and ask questions rather than take what is given w/o the worry or guilt of hurting some one's feelings, and that I have limits and breaking points and that I get overwhelmed!!! And its okay, I will get through this craziness, just one step in front of the other and repeat, again, and again. I've realized that I can't just think things through in my head, that I have to write it down on paper or it won't happen. Oh Lord, I pray for more self control and self discipline to accomplish my "to do" list more efficiently. :)
Anyways, the above was probably more than you wanted, sorry-I vented and now on to the pictures!!
My 32nd Birthday. A special weekend fish trip at Elk Mountain, Wyoming with the Marrou family, thanks friends for a wonderful and relaxing weekend.
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Little Miss Deanna Nicole... the last 2 1/2 months
Deanna beginning to smile.
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2 1/2 months old
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2 months old
Cute little "farmer girl" all decked out in John Deere!
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Brotherly Love
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Denver zoo day-we got Casey out of school early and went for a fun afternoon!
Both boys are excellent students! They received the SOAR award at school, it stands for Self-Control, Optimism, Attitude, and Respect. Both boys got the award for displaying self-control--how do they get it when I need/want it for my life?? go figure, anyways we are so proud of them. Look how boastful Casey's chest got when the principal was talking about him, too cute!
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1st snow of the fall-October 10th,lots of snow to play in! Duke (the dog) loved frolicking in the snow.
Adam's 6th Birthday-he has become a huge Rockies fan
Happy Halloween!
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