Saturday, November 14, 2009

update on Deanna

Deanna had a sleep study done on Nov.4th (Happy 9th Anniversary Brian) b/c we know that she tends to hold her breath and destats at night while sleeping. WE didn't know how often it happens or why, we still don't know why, that is a process that is being looked at, but the lil miss was put on oxygen this past Monday and needs it around the clock, ugh. It is hard to imagine that the little girl needs it, she looks normal and cute, but the drs. tell us that she has some obstruction that is keeping her from getting enough oxygen and that she is trapping CO2 (and probably doesn't help her eating ability). The result so far is that Deanna is delayed developmently, we know that she can catch up and we love the fact that she is still a baby for longer, but is saddend b/c we don't know the long-term results. Please pray for wisdom for the doctors and Brian and I. It is hard b/c we don't know the reasoning for much of anything w/her, super frustrating. This past week, we went to Children's again...and saw a pulmonary dr. He said that Deanna aspirates, has silent reflux, and has a hard time swallowing based on the sleep study. We are treating her w/ another steroid for her lungs as well as one for her nasal passages (to help reduce the swelling of her adnoids). We are treating pneumonitis with the other steroid. Bascially we are still treating symptoms and haven't yet come up with the problem to be healed. ugh.



WE have another ENT appt. at Children's on the 23rd of this month, so hopefully I will have more news that week of Thanksgiving and can post that week.I am taking a week off from appointments that week, yay!

sidenote: The boys brought firewood down from the shed today. Casey is now driving the ranger on our place and field behind our house, such a big shot! They loaded it up w/ wood and then it was too cute, Adam hopped out and gave hand signals for Casey to back up to the basement door to unload. Watch out- farm kids have taken over and taken charge.





Until later...Happy Thanksgiving! We are so blesed by what we have, what we can do, and what we live for. We are grateful for all of you!

slightly overwhelmed???

My very cute and adorable kiddos. I am so blessed!





I realize that many of you check this often and I apologize that I am not a very good blogger...I am overwhelmed with life as it is now. I'm trying to keep up with everyday things, such as school, homework, laundry, meals, new baby, and many appointments. Oh yeah, the last month we had a family birthday, school parties, Halloween, harvest party, a visit to Children's Hospital, ended soccer season and started wrestling and Adam's 6th birthday on top of my "normal" week. It isn't all bad and crazy, well I guess crazy and chaotic is now normal for us. I'm being refined as a person, mom, wife, and friend. There is more of me with less time, but a more complete me and less of a flaky person who isn't sure what I want out of life. Deanna's obstacles have taught me much about myself. I am a strong person, always learning, starting to question and ask questions rather than take what is given w/o the worry or guilt of hurting some one's feelings, and that I have limits and breaking points and that I get overwhelmed!!! And its okay, I will get through this craziness, just one step in front of the other and repeat, again, and again. I've realized that I can't just think things through in my head, that I have to write it down on paper or it won't happen. Oh Lord, I pray for more self control and self discipline to accomplish my "to do" list more efficiently. :)

Anyways, the above was probably more than you wanted, sorry-I vented and now on to the pictures!!

My 32nd Birthday. A special weekend fish trip at Elk Mountain, Wyoming with the Marrou family, thanks friends for a wonderful and relaxing weekend.





Little Miss Deanna Nicole... the last 2 1/2 months
Deanna beginning to smile.

2 1/2 months old

2 months old

Cute little "farmer girl" all decked out in John Deere!



Brotherly Love





Denver zoo day-we got Casey out of school early and went for a fun afternoon!

Both boys are excellent students! They received the SOAR award at school, it stands for Self-Control, Optimism, Attitude, and Respect. Both boys got the award for displaying self-control--how do they get it when I need/want it for my life?? go figure, anyways we are so proud of them. Look how boastful Casey's chest got when the principal was talking about him, too cute!



1st snow of the fall-October 10th,lots of snow to play in! Duke (the dog) loved frolicking in the snow.

Adam's 6th Birthday-he has become a huge Rockies fan


Happy Halloween!